An Angioma Alliance Action Group
CCM3 Action connects people affected by the ultra-rare Cerebral Cavernous Malformation 3 genetic mutation. Fewer than 100 people worldwide have been diagnosed with this genetic mutation.
Our mission is to create a supportive community, provide opportunities for quality treatment, and accelerate research toward a cure.
If you or your family member have been diagnosed with the CCM3 genetic mutation, we ask that you use our Talk To Us form to contact us as soon as possible.