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Family Gatherings

Our families are connected by a shared diagnosis. As CCM3 Action develops, we plan to arrange gatherings where affected adults will be able to meet each other face-to-face - and where our affected children will meet other affected children, some for the first time. We will work together so that no one with the CCM3 diagnosis need feel that they are the only one with the illness.

Please contact us at ccm3action@gmail.com if you would like to help organize a family gathering.